Arianna is a 22- year old working on her Masters in Art Therapy and has NF1. From the age of 5 through 11, Ari endured over a dozen major spinal surgeries to correct an 88 degree curve in her spine. As she has gotten older, she has begun to develop nerve tumors that have had to be removed surgically.
NF is a life-long progressive disorder, and new problems often come in new stages of life. While things are fine now, there is no guarantee that new issues will not arise in the future.
Video used with permission from the Children's Tumor Foundation